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Patients’ and caregivers’ conceptualisations of pressure ulcers and the process of decision-making in the context of home care

dc.contributor.authorGarcía-Sánchez F.J.
dc.contributor.authorMartínez-Vizcaíno V.
dc.contributor.authorRodríguez-Martín B.
dc.date.accessioned2020-09-02T22:18:53Z
dc.date.available2020-09-02T22:18:53Z
dc.date.issued2019
dc.identifier10.3390/ijerph16152719
dc.identifier.citation16, 15, -
dc.identifier.issn16617827
dc.identifier.urihttps://hdl.handle.net/20.500.12728/4653
dc.descriptionBackground: Although the addition of patients in the process of shared decision-making can improve their recovery, there is a lack of knowledge about patients’ and caregivers’ perceptions on the management of pressure ulcers at home. Objectives: To explore the conceptualisations of patients with pressure ulcers and their caregivers on the barriers and facilitators for their involvement in home care and in the process of shared decision-making regarding the care provided. Methods: A qualitative study based on grounded theory in a theoretical sample of 10 patients with pressure ulcers and 15 main caregivers from the health district of Puertollano (Spain). The data were based on semi-structured interviews, analysed using a coding process and the constant comparative method. Results: According to the participants, personal motivation and the involvement of primary care professionals facilitated their participation in the process of shared decision-making and generated feelings of positivity. In contrast, older age, having disabling pathologies, a low educational level or health paternalism were perceived as barriers for their involvement. Conclusions: A non-paternalistic care model and personal motivation facilitate the process of shared decision-making in the care of people with pressure ulcers. Further studies are required to deepen the understanding of this phenomenon and examine the barriers and facilitators for the involvement of patients and caregivers in the management of these injuries in other contexts. © 2019 by the authors. Licensee MDPI, Basel, Switzerland.
dc.language.isoen
dc.publisherMDPI AG
dc.subjectCaregivers
dc.subjectGrounded theory
dc.subjectHome nursing
dc.subjectPressure ulcer
dc.subjectQualitative research
dc.subjectShared decision-making
dc.subjectconceptual framework
dc.subjectdecision making
dc.subjectdigestive system disorder
dc.subjecthealth care
dc.subjectperception
dc.subjectqualitative analysis
dc.subjectresearch work
dc.subjectadult
dc.subjectaged
dc.subjectArticle
dc.subjectattitude to illness
dc.subjectcaregiver
dc.subjectclinical article
dc.subjectconcept formation
dc.subjectdecision making
dc.subjectdecubitus
dc.subjectfemale
dc.subjecthealth personnel attitude
dc.subjecthome care
dc.subjecthuman
dc.subjectmale
dc.subjectmiddle aged
dc.subjectmotivation
dc.subjectpatient attitude
dc.subjectprimary medical care
dc.subjectqualitative research
dc.subjectsemi structured interview
dc.subjectshared decision making
dc.subjectSpain
dc.subjecttheoretical model
dc.subjectvery elderly
dc.subjectaging
dc.subjectconcept formation
dc.subjectdecubitus
dc.subjectinformation processing
dc.subjectpathology
dc.subjectprimary health care
dc.subjectCastilla-La Mancha
dc.subjectCiudad Real [Castilla-La Mancha]
dc.subjectPuertollano
dc.subjectSpain
dc.subjectcolestyramine
dc.subjectAdult
dc.subjectAged
dc.subjectAging
dc.subjectCaregivers
dc.subjectCholestyramine Resin
dc.subjectConcept Formation
dc.subjectData Collection
dc.subjectDecision Making
dc.subjectFemale
dc.subjectHome Care Services
dc.subjectHumans
dc.subjectMale
dc.subjectMiddle Aged
dc.subjectPressure Ulcer
dc.subjectPrimary Health Care
dc.subjectQualitative Research
dc.subjectSpain
dc.titlePatients’ and caregivers’ conceptualisations of pressure ulcers and the process of decision-making in the context of home care
dc.typeArticle


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